List of Kidney Disease Websites for Children and Parents

These are the some of the best kidney disease sites for children and their parents. If you know about any others, please click on "comments" below to let me know.

• Nephkids


• National Kidney Foundation (NKF)


• Kidney Directions


• Children's Organ Transplant Association

Nephkids

Nephkids is a listserv, an interactive email group of parents of children with chronic kidney disease of all varieties.

Dr. Susan B. Conley and Dr. Melissa Gregory are pediatric nephrologists who moderate the group.

National Kidney Foundation (NKF)

The National Kidney Foundation (NKF) site has information for parents, kids as well as healthcare professionals.

Mission Statement of the National Kidney Foundation:

The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.

Goals of the National Kidney Foundation:

• Supporting Research and Research Training
• Continuing Education of Health Care Professionals
• Expanding Patient Services and Community Resources
• Educating the Public
• Shaping Health Policy
• Fund Raising

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Kidney Directions

Kidney Directions is a great site with lots of information and in multiple languages.

Kidney Directions is intended for people with kidney disease and their caregivers, family, and friends. It offers basic information about kidney disease - causes, symptoms, tests - along with ideas to help maintain health and a comprehensive presentation of treatment choices.

Children's Organ Transplant Association

COTA is an innovative fundraising organization that helps many people.

The Children's Organ Transplant Association provides fundraising assistance for children and young adults needing life-saving transplants and promotes organ, marrow and tissue donation.